I became allergic to the Carboplatin treatment recently. My throat closed up causing me to wheeze heavily. Thankfully, the nurses ran to retrieve an oxygen tank for me. Time to search for another treatment, since I can no longer tolerate this one. Plus, a scan showed that I also now have a new met spot on my rib.
A week or two earlier, I had taken a genome test, which tests for 340 types of mutations that are also present in other types of cancer, not just lung cancer. I had another mutation, NTRK 3, which does not have a targeted drug in the market yet. The next best solution is Crizobtinib that targets another mutation, ALK, but has been known to be somewhat effective with the NTRK mutation.
This little pill packs a punch. It has been so hard to keep food and water in with the nausea and GI track problems. I was eventually prescribed a nausea drug (Zyprexa), which for the most part, is keeping things under control. It was a tough beginning. At least my hair is slowly growing back.
A week or two earlier, I had taken a genome test, which tests for 340 types of mutations that are also present in other types of cancer, not just lung cancer. I had another mutation, NTRK 3, which does not have a targeted drug in the market yet. The next best solution is Crizobtinib that targets another mutation, ALK, but has been known to be somewhat effective with the NTRK mutation.
This little pill packs a punch. It has been so hard to keep food and water in with the nausea and GI track problems. I was eventually prescribed a nausea drug (Zyprexa), which for the most part, is keeping things under control. It was a tough beginning. At least my hair is slowly growing back.
Almei! So good to hear from you, but the carbo reaction sounds so scary! As for crizotinib, that's the drug I've been on for about 1.5 years now. It was really hard to get used to, but the main piece of advice that worked for me is never take it on an empty stomach. I eat a full meal before I take it, and that has helped a great deal. It took about two months to get the hang of it, but now I only get occasional nausea. If you would like to chat more about it, email me at lungcancerblogger @ gmail.com
ReplyDeleteBest of luck!
Tori